Here is the bruise on my abdomen from the injection the nurse
gave me at 6:30 am HUGE
Wednesday, May 30, 2012
Home Again...
I wake up early at
6:30, because the night nurse has come to give me my next injection of Lovenox.
Since this is the third time I've been woken up (4 o’clock to take blood, 4:30
to take my blood pressure) I decide I might as well get up. I arrange the chair
so I can read until I'm able to order some breakfast (which the hospital
actually does pretty well) and wait for Cody to get up. I havethe same daytime
nurse again and she lets me know that I have to be able to get my blood thinner
filled, and be able to give myself injections before they'll discharge me, so I
know what the goals are. I check online with my ipad and the blood thinner is
covered. It's normally $1450 for 7 days worth of the brand and $660 for the
generic. Luckily, because the surgery caused me to meet my maximum annual out
of pocket I won't have to pay for it. They call it in, so it will be ready,
then the nurse comes to teach me how to do the shots. When my mom was learning how to
do shots, she got to practice on an orange; I get to practice on me! So the nurse
makes me watch as she gives me an empty injection (nothing in the syringe) then
she makes me do it to myself. I'm kind of slow, but it goes in. The nurse does it
again, explaining that I need to make sure I pinch hard and rub hard with the
alcohol because that will direct the "pain soldiers" somewhere other
than where I'm actually sticking the needle. She also tells me that I need to
"dart" it, do it fast. She asks if I would like to try again, and I
tell her no thank you. I check to make sure it is okay I keep taking my birth
control, she says yes (and it is listed in my paperwork as medication that I am
continuing). She also tells me I'll need to make an appointment with my PCP to
check my blood levels for the injections, that I should do this on Monday. She
gets the paperwork ready, and I get to go home. We stop and Walgreens and get
alcohol wipes, 14 generic Lovenox injections, and the new blood pressure
medication that my PCP had just put me on (Metoprolol ER 50mg). After we
get the prescriptions I realize I'm missing coumadin. They told me I would have
to be on Coumadin and Lovenox at the same time. I call the nurse at the hospital
and she says that is something that my PCP will give me a prescription for. We
continue having an okay day, until after I eat and I get ready to give myself
my first injection of Lovenox. I take a look at my abdomen and HOLY COW!!! I
have an enormous bruise; I don't remember getting one, what the hell, where did
it come from. I think maybe something is wrong, so I call the nurse and she said that
I had it when we were practicing injections (I don't remember seeing it). Okay,
thank you. I give myself the first injection, I still can't dart it, but it’s
done, only 13 more to go! :(
Tuesday, May 29, 2012
Another Trip to the E.R.
So, the weekend was pretty good overall, but my left calf muscle
was still really tight. It felt like a constant charlie horse. The doctor's
offices are closed because it was Memorial Day weekend, so I had to wait until
today to call and make an appointment. I call my new PCP's office and they
can get me in at 1:30. I come in and explain the systems and she tells me she
can see 2 possible things it could be. 1 - it could be that I have a blood
clot, which would be weird because I have been up and walking around and moving
my legs, 2 - it could be that the nerves in my calf are dying because the ones
they are linked to in my spine were compressed for too long, and they just
can't recover. She sends me for an ultra sound at a place right behind the E.R., she said if they say it is blood clots, I have to go to the E.R. to
get the first dose of blood thinner, and they'll send me home. I get in right
away, and sure enough, I have 2 blood clots in my left calf that are not
completely obstructing blood flow (otherwise they would have been way more
painful)! Cody and I head over to the E.R., Cody has to work
tonight, so he's going to have to leave me at the ER and Donna will come and
wait with me. Cody comes and gets me checked in, and there are A LOT of people,
way more than the previous 2 times I was here. I get checked in and he has to
leave. I put in a call to the neurosurgeon, because he is at this hospital today today, and
maybe he can get me in earlier, but I have to leave a message. Donna arrives a
little while later, she tells the check in lady that my neurosurgeon is at the hospital today, but there isn't much they can do at check in. We get to triage, I'm
not sure if the lady was new or what, but I was like, my neurosurgeon is here today,
can you please let him know. She's like, uh I'll check on that. I explain that
my ultrasound results should have been sent right over, she can't find them, I
tell her that I have 2 confirmed blood clots. I call my PCP's office,
who said they have them and will fax them right over. Donna insists that I get
a wheelchair and as soon as we get out of triage they are calling me to be seen
by a doctor. My PCP's office calls back to see if they have been
received, I say they must because I'm getting ready to be examined again. A
nurse comes back and says that I will be admitted, which really upsets me
because I don't like spending time in the hospital, and that they will have to
put in an i.v. I do NOT like needles... I talked them out of the i.v. the day
after my surgery was complete because they are so very uncomfortable, but they insist
I have to have one. Donna calls my mom to let her know that I am back in the
hospital for blood clots. An EMT (or so I thought until she turned around and I
read her t-shirt that says Pima EMT Trainee) comes and puts in an i.v. then
another nurse comes and gives me my first blood thinning injection in my
stomach. I'm not having a good time at all. I'm not sure if I've had a bowel
accident, and they won't let me walk to the bathroom to check (they'll bring me
a bedside toilet, uh no thank you), they tell me they are working on getting me
a room. Finally about, 45 minutes later someone comes to take me to my room.
They're wheeling the bed and we get to the room, but it isn't big enough for
them to roll the bed I'm on into so they can transfer. The orderly asks if I
can walk, and I say that I walked into the hospital, Donna doesn't want me to
walk. But, I do and while I'm up, my first stop is the bathroom!! Luckily, no
accident, but my bladder sure was full!! I'd gone about 6 hours without peeing
which is like, a post-surgery all time best while awake! I get into bed and
then there is just waiting. The day nurse comes through, but she'll be
leaving in just a bit because of the change in shifts. She informs me that I've
missed the dinner cut off, so Donna agrees to go get me something to eat, she
doesn't want to leave me alone, but she hasn't eaten either. She brings us back
some dinner and we eat. It's about 8 o’clock and Cody should be getting off of
work soon, so he should be here about 9, I tell her to go home and see Gordon
and Tiffany, I'll try and get some sleep, she reluctantly agrees. I let Cody
know what I'd like from home since he has to go there first and give Castro his
insulin and food (more Depends, some wipes, iPad, library book, fuzzy socks,
birth control) and he brings everything except the birth control (I forgot to
include it, even though I was thinking of it). We visit for a bit, he eats some
dinner. We talk, I don't want to leave the cat alone, and I should be getting
out tomorrow, so I think he should sleep at home. He doesn't want to leave me,
but knows he won't get much sleep in the chair. He leaves around midnight. I do
manage to get some sleep between poking and prodding.
Labels:
Blood Clot,
Blood Thinners,
Castro,
Cody,
Donna H.,
ER,
I.V.,
Mom,
PCP,
ultrasound
Thursday, May 24, 2012
First Post-Surgery Dining Out!
To start the day off, Cody spoils me and we enjoy some chocolate
croissants from Baker-Wee
that go perfectly with my Starbucks Venti White Chocolate Mocha (non-fat no
whip) with 2 pumps raspberry. It is a great way to start the day, yummmm. The
rest of the day goes pretty well and I'm excited for tonight, which will be my
first post surgery meal out. Cody and I are going with Jason and Carrie to try
a place called Babbo's Italian Eatery.
Since I'm still having issues with flatulence and accidents I wear my Depends
to dinner. It's great to see Jason and Carrie because I haven't seen them since
I was in the hospital. Plus, I'm not making dinner or having to do the dishes
(my cleaning has basically only been dinner, dishes and laundry since I've been
in the hospital). We discuss my progress and Carrie comes to the realization
that the Happy Bunny Magnet I bought forever ago in Las Vegas makes sooo much
sense now, as it says "Oops I pooped on your things!" I make it
through dinner with no accidents, although my left calf is starting to bother
me more than normal. It's usually a little tight, but it seems to be getting
tighter. While we're at dinner, a couple of my other good friends, Donna K.and
Kris, are at Phoenix's Comic-Con and have gotten me a surprise! Donna got me a
Jamie Bamber (Apollo from Battlestar Galactica) autographed photo that says
"To Kristi with love, Jamie Bamber." All in all though, a great
day!!!
Big Day in Kindergarten!!
Today was great!!! I got to see my kiddos and attend promotion.
I saw some of my coworkers as well. It also went really well. It was funny to
hear some of the things that they want to be when they grow up (Power Ranger is
just one example), they sang some songs and got their promotion pictures. I did
a little walking around, and the kids all got the chance to hug me if they
wanted (while I was sitting down, that way they weren't hugging my incision).
All of the parents from my class came (except for one, the same one that didn't
come to meet the teacher, or either of the parent teacher conferences, or
anything) and so my one kiddo was stuck in the classroom after all the other
kids had gone home with their parents while they waited an extra hour for their
older siblings to get out of school.
It was also a good day for me. No accidents! Even when I bent down to tie some shoes which generally causes little bowel accidents. I was able to stay the entire time, although those 3 hours were really pushing it, and by the time I got home I was exhausted! It was totally worth it to see all my kiddos again!!
It was also a good day for me. No accidents! Even when I bent down to tie some shoes which generally causes little bowel accidents. I was able to stay the entire time, although those 3 hours were really pushing it, and by the time I got home I was exhausted! It was totally worth it to see all my kiddos again!!
Wednesday, May 23, 2012
New Doctor
This morning Cody drove me down to meet with the new doctor that had been
recommended by my colleagues at Heritage school, PCP. She did a
standard check up and she is also concerned that my blood pressure is elevated.
I never had a problem before the surgery, but now it seems the blood pressure
is a concern. I also had the headache the other day, so PCP puts me
on Zomig (this was the last thing I was on before I stopped having the
migraines years ago) for some crazy reason my insurance company only allows 4
per month! She also keeps me on blood pressure medication. I also ask what I
can do because I seem to have some irritation in my pelvic area where my skin
is peeling, and I think it's "diaper rash" she recommends some
Desitin cream on it and to let her know if its not getting better. We drop off
the prescriptions and pick them up later. I take a shower, and blow dry my
hair, putting on my diaper rash cream so I can put on my Depends. I head back
into the bathroom to put up my blow dryer and come back to the bed and I notice
some poop on the floor. I tell Cody I think Castro has had an accident, and he
tells me he doesn't think it's Castro's. He's right, it's mine. Regardless of
the accident, I'm totally excited for tomorrow and promotion for my Kinders at
school! First time I've seen them since the end of April, last day of school!!!
Monday, May 21, 2012
Scholastic Sale
So anybody who knows me knows that I love to read and I love to
buy books for my classroom! When I found out that I'd be teaching 3rd grade, I
couldn't wait to get to the sale and get some new books for my classroom
library. Since getting home from the hospital, I had been worried that I would
not be able to do this sale (because it is lots of walking around in a
big warehouse). Things had been going well, I have lots of farting going on that I
can't control (because of the sphincter muscle thing), but haven't really had
any accidents, so we decide to go. Since the surgery, every time I'd been out
in public I've worn Depends, so I do that with this outing as well. We get to
the sale, and I fart (it’s a bit stinky) Cody makes a face, and I let him know
that I just made a stinky. We go through the sale and I look at tons of books,
it takes about an hour and a half to get through it. I'm totally excited about
my purchases and we head home. When I'm getting out of the car, Cody says there
is a spot on the back of my shorts. When I get into the bathroom I see that
I've had a bowel accident. This makes me sad; it had been a little while since
I had one and I thought that streak was over. We relax and watch some t.v. then
I start to get a headache around 4pm. I take a Percocet, drink a Starbucks
DoubleShot and then take a nap. I'm out for quite a while, Cody makes me some
soup for dinner and I take another Percocet because I still have the headache,
put some ice on it, I end up throwing up and then I'm finally able to go to
sleep. I haven't had migraines like this in forever! Good thing I did research
and found a new PCP from all of the recommendations I got from my colleagues at
school!
Monday, May 14, 2012
First Post Op Follow-up
The weekend was pretty uneventful, I had a visit from Cammy on
Saturday because she was dropping off pictures from water day so I can add it
to a cd full of pictures from the year.
Today I had my first post-op with the neurosurgeon. He is pleased that my bladder has pretty much come back, but a little disappointed that the bowels didn't come back with them. Usually the recovery of the bladder and bowels goes hand in hand, but not always. He lets me know that if we hit the 3 month mark and things still haven't come back that we will start to consider it a permanent thing. He checks out my incision and says that it is looking good. He also says that the numbness in my left leg is normal, and we're looking at the same time frame for the bladder and bowels. Cody asks how different my current situation could be if we'd gotten in sooner. The neurosurgeon thinks we got the surgery relatively early (he thinks the disc ruptured on Wednesday, so surgery on Friday was an early reaction). He also said that I need to start walking around more, trying to get back to normal. The only thing with this is that the numbness on the bottom of my left foot makes it a little uncomfortable and my feet are still pretty swollen. I tell him that my calves (even my right one) are numb and that I noticed it when I was shaving my legs the day before. He squeezes my leg and says that if there was a blood clot I would be jumping off the table in pain. He suggests that I just give it more time. I ask about paperwork that I need filled out for work. He says it will cost $25 and they can mail it out when it is done (The Tempe Doctor's Office was going to charge $25/page!). We leave the office and head to the library to drop off my library books that were due. Then we head to school so that I can turn in my signed contract. I get to stop in and see Lynn, and she is happy to see me up and around. When I get into some detail about what happened she is insistent that I don't go back to the Tempe Doctor's Office, since they dropped the ball. She suggests that I send an email out to the staff for recommendations. I'm not ready to see the kids yet because I'm afraid they'll try and hug me and they're incision height. I get to see some other teachers that I have been missing as well. We grab some McDs for lunch, then head home. Even that little bit has me pretty exhausted. We relax and watch some t.v. and I send out the email to the staff getting some recommendations for a new doctor's office.
Today I had my first post-op with the neurosurgeon. He is pleased that my bladder has pretty much come back, but a little disappointed that the bowels didn't come back with them. Usually the recovery of the bladder and bowels goes hand in hand, but not always. He lets me know that if we hit the 3 month mark and things still haven't come back that we will start to consider it a permanent thing. He checks out my incision and says that it is looking good. He also says that the numbness in my left leg is normal, and we're looking at the same time frame for the bladder and bowels. Cody asks how different my current situation could be if we'd gotten in sooner. The neurosurgeon thinks we got the surgery relatively early (he thinks the disc ruptured on Wednesday, so surgery on Friday was an early reaction). He also said that I need to start walking around more, trying to get back to normal. The only thing with this is that the numbness on the bottom of my left foot makes it a little uncomfortable and my feet are still pretty swollen. I tell him that my calves (even my right one) are numb and that I noticed it when I was shaving my legs the day before. He squeezes my leg and says that if there was a blood clot I would be jumping off the table in pain. He suggests that I just give it more time. I ask about paperwork that I need filled out for work. He says it will cost $25 and they can mail it out when it is done (The Tempe Doctor's Office was going to charge $25/page!). We leave the office and head to the library to drop off my library books that were due. Then we head to school so that I can turn in my signed contract. I get to stop in and see Lynn, and she is happy to see me up and around. When I get into some detail about what happened she is insistent that I don't go back to the Tempe Doctor's Office, since they dropped the ball. She suggests that I send an email out to the staff for recommendations. I'm not ready to see the kids yet because I'm afraid they'll try and hug me and they're incision height. I get to see some other teachers that I have been missing as well. We grab some McDs for lunch, then head home. Even that little bit has me pretty exhausted. We relax and watch some t.v. and I send out the email to the staff getting some recommendations for a new doctor's office.
Wednesday, May 9, 2012
Another Day at Home
Cody had to do some errand running for me today. I needed pictures of
my kiddos using the Leapfrog Tag readers for my DonorsChoose.org project, he
also picks up my contract and the drops off the book order information so that
my sub can get the books out to the kids as soon as they come. Cammy makes sure
that Cody gets around school okay, and Cody leaves an extra camera so that
Cammy can take pictures on Water day (A day where the kinders spend the
afternoon doing lots of fun water activities!). Luckily Cody doesn't work
tonight, so he can stay home with me. I'm pretty sure he's uncomfortable
leaving me at all, but he has done it for little bits. Driving to Tempe and
back, however is a different stories. He'd be leaving me alone for about 4
hours, and I can't bend down yet. I'm glad he is able to be home and take care
of me!
Tuesday, May 8, 2012
Oops...
It was so nice to sleep in my bed last night. Even if I didn't
get to sleep on my stomach like I always do. The neurosurgeon said no more stomach
sleeping, that it is bad for my back. So, I took Lynn's advice and laid on my
side with a pillow in front of me, and another between my knees. I slept pretty
well, and managed to make it to the bathroom with a full bladder, no accident.
We spent the day watching some t.v., its uncomfortable for me to sit on my
bottom, because it stretches the skin on my back, so I curl on my side with a
pillow between my knees. I take the Percocet every 4 hours and it knocks me out!
I end up doing a lot of sleeping off and on. Once, I wake up and I feel like I
have to go to the bathroom and have a bowel movement, but I don't make it to the bathroom. One
of the side effects of the Cauda Equina Sydnrome is that I don't currently have
control over my sphincter muscle. I can feel when my bladder and bowels are
full, but I can't always control them. So, as much as I hate to do it, I send
Cody out to buy some Depends. While he is out the chiropractor calls to find out
how I am doing. I'm on Percocet and not thinking clearly. I can't remember the
name of the syndrome, so I don't tell him. I let him know that I am still numb
and uncomfortable in my pelvic region and that I do not have control over my
bladder and bowels like I used to. He asks that I keep him updated and let him
know if there is anything that I need. What I need is to be back to the way
that I used to be, but I don't see that happening for awhile. Cody gets home
and I try out some of my new Depends underwear. It sucks that I'm 34 and
wearing diapers again, but if it means I can sit on my furniture instead of
staying on the toilet, then I guess it will work. I decide since I've already
talked to the chiropractor that it's time to talk to my P.A. at the Tempe Doctor's office and let her know
about the major ball dropping that happened. I call and leave a message that I
need to talk to her, not her nurse, but my P.A. herself, and to please have
her call me when she can that day. A little later I receive a call back from
her, she asks how the surgery went and how I'm feeling and I let her know (Cody
had called her office while I was in surgery to let them know I was having it).
I let her know that I had called her several times a day on Tuesday and
Wednesday with my concerns about being numb and that I asked for a call back. She
looks in my file and says that the only note there was is from Tuesday saying I
asked about my x-ray results from the previous week. I ask if she even got my
call from today, and she said no, she was just wanting to check on me. I let
her know that I have been with this practice for 14 years, and even
though I moved across town I continued to stay with that office because I
trusted them, and genuinely enjoyed the doctors there. Having had this major
miscommunication with the office staff and them not properly passing on
messages is serious, and I let her know that I'm not sure I will be continuing
with their practice because this misstep almost cost me the use of my legs. She
says that she understands and she puts me on hold for a moment while she
informs the Doctor/Practice Owner of the ball dropping. He is upset as well. The rest of the day
goes by pretty uneventfully, except for the unfortunate news that Maurice
Sendak (author of Where the Wild Things Are) has passed away.
Monday, May 7, 2012
Finally!!!!
Cody comes back in the morning after giving Castro his food and insulin.
Hopefully today will really be the day that I can be discharged. The neurosurgeon's partner comes to see me this morning and finally gives me
the okay to leave. The neurosurgeon's partner and attending physician are both concerned that my blood
pressure is still on the high side, but give me a blood pressure medication to
help keep that under control until I can see my PCP. The neurosurgeon's partner tells me to
schedule a follow with their office because they fill up quickly. I should be
up walking around, I have Percocet for the pain, a steroid to help with the
swelling, the blood pressure medication, an antibiotic and Valium for nerves. I ask if I
can please take a shower before I leave the hospital (because they have a
shower chair), and am told that I can, but then it seems like they are trying
to rush me out. I insist that I'm not leaving until I take a shower, they ask
when I think I'll be ready to leave and I say about an hour. Cody helps me
carefully take a shower. I can't stand for long periods of time, so the shower
chair really helps. We check out and head home. I'm so happy to see Castro and
our house, but I am exhausted from not really having slept the night before. So
I end up sleeping for a bit. Cody runs to the store and gets some essentials,
my prescriptions filled and a McDonald's Mocha Frappe (if I can't have a
Starbucks this will do!) while I nap. I hurt, and my back feels tight, so I
take one of the Percocet. I still feel numb down my left leg and in the saddle
area. The neurosurgeon's partner had said that this could take months to come back. I had
Cody take a picture of the incision because I hadn't seen it yet. We take it
easy relaxing in the bed, watching t.v. shows that I missed out on while I was
in the hospital, and call it an early night.
Sunday, May 6, 2012
Sunday...
Normally, Sundays are one of my favorite days of the week. I get
to relax (usually kick back with a Starbucks) and take a look at the Sunday
paper. I love to look at the ads and check out the sales. In the hospital
though, this is not as fun. Besides, the fact that I'm still sore and the
medications are driving my blood pressure and blood sugar all over the place, I
just can't relax, I want to go home. Cody makes an effort to get Castro his
insulin and food early so that he can be with me when the neurosurgeon comes to
check on me. Cody gets there nice and early (since yesterday the neurosurgeon came around 8am) and we end up waiting for a bit. As soon as I step into the bathroom to
try and pee, he shows up. He talks to Cody, and me through the
bathroom door. He says that he's not really comfortable releasing me with the
blood pressure issues, the fact that I'm still working to control my bladder,
and I'm still retaining even after peeing. He's not ruling it out, but he'd
like to re-evaluate later in the day to see how I'm doing. I ask if I can at
least take a shower, and he said that would probably help me feel better, so to
do so with the help of Cody or a nurse. When I ask later for showering supplies
(towels, soap, etc) they are told that there is no record in my file that I was
given the o.k. to shower, so it is put off again! Later in the evening Cody and I
relax, (he brought his laptop from home) and we share the little overbed table.
Him on one side playing a game on his laptop, me on the other. I do some
reading, I put in a Scholastic book order so my kiddos get their books before
the last day of school, I play some games on my iPad. The neurosurgeon does not come back to
check on me. The attending physician comes through and says that a urologist will be coming
to see me at some point today because they are worried that I might have a
secondary urinary infection because there had been blood in my urine (because
they make you pee into a cup so they can measure your urinary output). I once
again state that of course there is blood in my urine, I am MENSTRUATING!!
(Really... how many times do you have to state the same thing over and over and
over). I pee again, and they scan and it shows I'm only holding 100ccs (just
over 1/3 cup), this has been considered acceptable. So a couple hours later a urologist comes through. He had been told I was on a catheter
(I'm not), he had been told I was retaining large amounts in my bladder even
after peeing, which is also no longer true. I also let him know that they put me on an antiobiotic just in case I had a urinary tract infection. He leaves a card and tells me to
follow up later with my PCP or with his office to ensure there really is no
urinary infection. By now its getting late into the afternoon, and I'm starting
to realize I am not going home today either. The attending physician comes through and says
that I will be staying again, until I have more control over the bladder, blood sugar and
blood pressure. My blood sugar is apparently too high, so I get another 2 units of Inulin Lente before dinner. Cody leaves to get Castro his insulin and food, as well as some
dinner for himself. I take a small nap, and wake up as I realize I have to pee,
but just can't make it fast enough. Small accident, but this is what they were
talking about with control of bladder. Cody comes back and we relax some more
together, but I convince him to go home and try and get a good night's sleep so
he'll be better ready to take care of me when I come home tomorrow.... because
it has to happen... I have to go home tomorrow or I will go insane. Cody goes
home to get some sleep. I try, but after about 30 minutes I can't sleep. I get
up and walk around the floor, I watch some Netflix, I watch some t.v., I read,
I get up and walk around some more and I pee a lot. It's finally 4am before I
fall asleep, then at 4:30 they draw more blood, and take blood pressure and
blood sugar. I finally fall back asleep for until around 7am.
Saturday, May 5, 2012
The Day After Surgery
Cody stayed the night with me, but he needed to leave to get Castro his
morning food and insulin. I'm still very sore from the surgery and my saddle
area is numb. I fight with the nurses to remove the catheter and to be able to
wear underwear and sanitary napkins. Donna arrives and is with me when neurosurgeon comes to visit this morning. He is upset that I didn't get up and do
any walking around the night before. This is just as the nurses are changing
shifts (7:30am) and I get the same AM nurse as I had the day before. She said
she knew that I was clear to walk without a brace. I explain that the night
nurse did not know this, and there was nothing in the notes to indicate, and
normally they don't allow patients to walk after back surgery without a brace.
He says that we can remove the catheter and see how I do on my own for peeing.
He says if I can manage my bladder and get walking there is a chance that I can
go home today. I ask if I can please wear underwear and a sanitary napkin now,
and he says yes. Luckily, Cody not only brought me my favorite Starbucks
breakfast (Venti White Mocha Non Fat No Whip with 2 pumps Raspberry and a
Perfect Oatmeal yummmm), but also some undies and napkins so I put some on. Now
I've just gotta get walking around. Cody is disappointed that he didn't get a
chance to see the neurosurgeon, who'd have thought that the doctor would be in at
7:30 on a Saturday! Donna leaves because she has to do Karaoke that night (and
she's barely seen Gordon or Tiffany since this all started) and Cody takes me
for a lap around the floor. When we get back, Cody leaves to go check on
Castro, he's been home alone a lot! While Cody is gone checking on Castro, I
convince the nurses to remove the I.V. and Jason and Carrie come to see me. I'm
looking totally awesome since I haven't had a shower since uhm Wednesday (4
days) and am not feeling too confident in hospital gown. At least am sitting in
the little recliner that they have, and Jason and Carrie take the other chairs.
They are so sweet and bring me some pretty purple flowers and gift cards to
Mimi's Cafe and Rock Bottom Brewery so that Cody doesn't always have to cook
when I finally get to break out of this place! The attending physician comes in to see us. He is concerned because I haven't peed since they
removed the catheter and its been about 4 hours (hello, teacher's bladder). I pee a little, but they can
feel my bladder and tell it wasn't nearly enough. They tell me everytime I pee, I will have to have a bladder scan (ultrasound) They come do the ultrasound and I'm holding about 300ccs still, which is like 1 and 1/4 cups. So they reinsert a catheter to drain it.
The nurse tells me that the catheterising should hurt, but I don't feel anything,
still numb in the saddle area, then they remove the catheter. They are also concerned about my blood sugar (which was up around 300) and my blood pressure (162/109). They say that these can be related to the steroid, dexamethasone, that I am on to help with the iflammation from surgery. Before dinner they give me 8 units of Inulin Lente and my blood sugar drops to just over 100, and that is after eating dinner. I get up and do more walking. The attending physician comes
back and says that because I'm retaining too much urine and my blood pressure is
high (due to being in a hospital AND the steroid they have me on for the
inflammation in my back) I'm not going home today. I am devastated. Cody stays
the night again tonight after going back to check on Castro, but I know that
sleeping in the chair can not be comfortable for him. The night nurse comes and checks my blood sugar again, and its high (about 150) but she decides not to give me any insulin, because she wants to check it again later to make sure its not related to the dexamethasone. She checks later and it is closer to normal, so no more insulin tonight.
Carrie says that this should be our Christmas Card for this year!
Friday, May 4, 2012
Surgery Day
I luck out and get to have an early surgery. Cody spent the night
with me, and Donna came back. They want me completed naked, which I am not
comfortable with because I am menstruating. They tell me I can wear some
special mesh underwear (think fishnet tights) and their special sanitary
napkin. I meet the neurosurgeon and he tells me that he
is going to remove my L5 disc because it has herniated and it is pressing on
the lumbar sac and compressing the nerves that control the lower half of my
body, including my legs, bladder and bowels. I have something called Cauda Equina Syndrome, which is why there was the numbness in the saddle area (it is
one of the tell tale symptoms for the syndrome). I, like the idiot that I am,
ask how long I'll be out of work after (I'm thinking of my appendectomy where I
was only out a week). He tells me that I'll be out for several weeks. I start
to cry, thinking of all I'll miss, because that's the end of the year. I tell
Cody he has to call Lynn and request some subs, I need Mrs. Grasso or Mrs.
Pearson, or someone who is going to take care of my kids. Donna tells me that
she will keep my mom updated. Then they wheel me away. The next thing I know
I'm waking up in a bigger room, and I have no undies (not even the fishnet
guys!) First order of business is I NEED underwear. Cody has gone while I was
in post-op and given Castro his insulin for the morning, but Donna is still
with me. I'm allowed some ice chips, and I'm so thirsty. After a little while the neurosurgeon comes to visit. He says that the surgery went well. The disc was
the 2nd or 3rd largest he has ever removed and he even took a picture (it's graphic) and emailed it to me.
He said if I had waited for a day or more I would have likely been paralyzed
from the waist down. He tells me that with any luck if I get up and walking
around today that I can go home tomorrow. I have to be able to pee on my own
(they have me on a catheter). Cody brings my iPad, a magazine, a book, and a
picture of Castro on his phone. Donna stays until early evening, we ask the
nurse if I can get up and take a walk (which is what the neurosurgeon wanted me to do)
but she says there is no order for a back brace, and she can't take the chance
that I hurt myself walking without a brace, so no walking for tonight. They
also won't remove the catheter. Which means I need to practice walking and
peeing tomorrow if I want to go home tomorrow. Donna leaves to go spend some
time with Gordon, and Cody stays the night (after he goes home to give Castro
his insulin).
Thursday, May 3, 2012
You Have Got To Be Kidding Me (Part 2)
Cody drives me back to our side of town so that we can go to
the E.R. for the MRI. I call my mother in law and let her know where we are
headed, she says she can leave work, but I tell her not to worry and we'll keep
her updated. Thank goodness the P.A. gave me the shot of Toradol, or the pain in
the car ride back would have been unbearable. When we get to the ER, we get
another wheelchair, because the left leg is giving me problems still. I let
them know every step of the way that I was just here a week ago. We have to
wait for about 90 minutes before we get to the back. The pain is escalating,
the Toradol must be wearing off. They ask for me to get into a gown, I do. The
insurance lady comes to get my card and info. I have to give a urine sample. So
I wobble over to the bathroom (I'm almost as far away from it as you can get)
wait for the person who is currently in there (because of course there is only
one) and then finally work on the urine sample. When I take it back, they kind
of freak out. But, because if all of this back stuff isn't bad enough, I'm also
menstruating, isn't it just great to be a woman? They nurses come back and ask
about the symptoms again. I let them know that I'm experiencing numbness in the
pelvic area and left leg. They ask about the urine, I tell them. What is my
pain level, I'm at about a 5. They ask me to turn over, they're going to
perform a rectal exam. I do, they put on the gloves and I know they're getting
ready to stick their finger in my bottom... but I don't feel anything. They ask
me to squeeze, I tell them I can't, I can't even feel their finger. Now they're
worried. They give me a shot of Valium and Demerol to prepare me for the MRI.
They leave... I start to get a little sleepy, Cody is still there, then all of
a sudden I'm on fire. I feel like every nerve ending in my legs are on fire and
as if someone has scooped out my uterus and its hollow. I'm now at like a 20 on
the pain scale that goes to 10. Cody is very concerned that I'm going to pass
out from pain. As I'm writhing around in pain the insurance lady comes back in
and wants us to put down some money (we just gave them $500 last week when we
were here). Finally a nurse comes in and gives me a shot of Dilaudid and
things start to come back under control pain wise. They wheel me for
the MRI, and the Dilaudid is starting to wear off and my left leg feels like it
is on fire, but I have to stay perfectly still during the MRI or they will have
to do it again. I somehow manage it. I get back to a room, and Donna is there
talking on the phone to my mom, Kathy, because Cody had to go home and give
Castro his insulin (for the first time by himself). I want a glass of water so badly (those of you who know me, know I'm not a water girl),
but they say that I have to wait for a neurologist to review the MRI before I
can do anything. A nurse comes back in and tells me that I will be having back surgery
in the morning. I can have some dinner or something to drink, but nothing after
midnight. I call my mom, and try and reassure her that its going to be okay,
I'm going to be okay. Cody comes back, then leaves to get me a salad for
dinner. I'm put in a bigger room for pre-surgery. I'm allowed to have Dilaudid
to help control the pain, and the goal is to make it through the night.
You Have Got To Be Kidding Me (Part 1)
I wake up and I am still experiencing numbness in my pelvic
region, extending down my left leg. I call my P.A.'s office and again let them
know that I am numb and I need her to call me back. Then I call chiropractor's
office and grab the first open appointment. Cody drives me over there, and I'm
so slow... I can barely feel my left leg... my buttocks are numb, my pelvic
area is numb, I'm slow and hurting despite the medications that I am on. I
know.. its unusual to say that even though I'm numb it's painful, but it is
completely possible. I get into see the chiropractor, he takes a look at me, palpates my
back and says that the x-ray came back clean. He said it looks like there could
be some calcification in the kidneys, which is a sign of a kidney infection, so
he palpates my kidney and asks if it hurts, which it doesn't. He tells me he is
not going to adjust me, I need to call my P.A./PCP and arrange for an MRI. He tells
me again that the numbness is related to the bed rest and how I'm doing it,
nothing to be concerned over. We leave and I book an appointment for my P.A.'s
office, insisting I still need her to call me back about the numbness. Now,
let's keep in mind that I live in Peoria and my P.A.'s office is in Tempe (a 40
minute drive). Sitting in the car for the short trip to the chiropractor was painful,
I know that heading to the P.A.'s office is going to be torture, so I try and time
taking the Percocet so it will be the most beneficial. When we get to the P.A.'s
office in Tempe for appointment, I'm headed to the back walking with Cody and
my left leg feels like it goes out from under me. They bring out a wheelchair
and wheel me back. The P.A. takes one look at me and asks me what I'm doing there.
I'm not really in the mood to bring up the fact that I've been calling. I tell
her that the chiropractor recommended that I get an MRI, to get an MRI I need a
prescription from the doctor. She asks me about my pain level and I tell her
I'm at like a 6 or 7, the highest it has been, but I'm more concerned with the
numbness that I'm experiencing in my pelvic region and down my left leg. The P.A.
says that the best way to go about this is for me to go to the ER and have an
MRI done. If she were to just send me for an MRI they would have to wait for
her to get the results, but if I go to the ER they can have a neurologist look
at it right away. She is very concerned about the numbness and wants to know if
there have been any issues of incontinence with it. I let her know that there
have not been. She gives me a shot of Toradol to help make the trip to the ER
more bearable, and tells me if there are any issues admitting me, to please
call her and she will talk with them. She expresses that I must tell them about
the numbness in the pelvic area because this is very important. As we get out
to the car I see I have a voicemail from the P.A.'s office telling me
that my x-ray has come back normal.... lack of communication.
Wednesday, May 2, 2012
I Am Slowly Going Numb.... Numb Going Slowly Am I...
After bedrest on Tuesday, I wake up Wednesday and am concerned
because my butt and pelvic area are going numb. I put in a call to the Tempe doctor's office
when they open at 8am to see if they have the x-ray results yet, and to ask if
she can call me because of the numbness. I call the chiropractor's office at 9am when
they open to ask about the numbness. His office staff checks has him call me
back and he says that this is normal becase of how I'm doing the bed rest. I
take him for his word, I mean... he is the expert right, this is what they are
supposed to know. I'm still taking the Percocet that was prescribed by the ER
and then the Flexeril that was was prescribed by my P.A. at the Tempe doctor's office. I'm icing my back like
the chiropractor said to, but as the day progresses the numbness continues... my left
leg is getting tingly, and my butt feels extremely numb. I call my P.A. at the Tempe doctor's office
again around 4, because I know that they leave at 5, and am very clear that I
need for the P.A. herself to call me back becaue I am experiencing numbness. Time
passes and now both offices are closed, the P.A. has not gotten back to me,
despite the calls I put in, so I resolve to make it through the night (I sleep
a lot, the Flexeril tends to knock me out), and plan call the P.A. and the chiropractor's
offices first thing in the morning.
Total calls to the Tempe doctor's office today = 2
Total calls to the Tempe doctor's office today = 2
Tuesday, May 1, 2012
Another Day... Another Pain...
I woke up, every intention of going in. I went to bed nice and
early and set the alarm for 5 am. I get up, head out to the kitchen, come back
into the bedroom for my laptop so that I can print something out for school
(because I had this great idea). As soon as I bend down to pick up my laptop, I
know that is it… I’m not going in today either. I wait until a decent hour (6
am) and call Cammy again. Now I’ve just got to wait for the chiropractor’s
office to open up. He has been out of town since Friday, and I remember
him saying he was coming back today when we met on Wednesday last week. Have
some breakfast and coffee, I call the Tempe doctor's office and ask if they’ve gotten the
x-rays. They say that they don’t have them, so I call the radiology place and
have them resend the results to the Tempe doctor's office and ask if they can send them over
to chiropractor’s office too. I call the chiropractor’s office as soon as they open and they
can get me in by 10am. Getting in and out of the car is rough; I’m walking
slower and more stiffly than before. The chiropractor takes one look at me and says he’s
not adjusting me, he’s not doing anything. He recommends that I take the rest
of the week off of work and stay on bed rest (on my back, pillows under my legs
so my knees are at a 90 degree angle). This kills me, I miss my kids, we have
field day this week. I want to be at school. Plus, there’s the whole financial
thing, I don’t have any paid time left… I ran out of that last week. But, okay…
if you’re telling me you can’t even touch my back because it’s that bad and I need
to rest, then I’ll rest. We get home and I call Lynn to let her know what the
chiropractor said about not coming back for the rest of the week. She again
tells me not to worry about it. This was a plan of improvement offense in my
last district, the type of thing that would keep you from getting 301 funds,
from being offered a contract for next year. She tells me not to worry, Peoria
isn’t like that, she’s already offered me a spot for next year, I just need to
worry about getting better! This is why I told Lynn back in December, I don’t
care where you move me, but let me stay at Heritage! Everyone is this great,
not just Lynn… all the other staff is supportive and helpful, the parents are
involved and the kids are the best!! I try to relax and just take it easy,
which isn’t easy for my type A personality.
Total calls to the Tempe Doctor's office today = 4
Total calls to the Tempe Doctor's office today = 4
Subscribe to:
Posts (Atom)