Tuesday, May 8, 2012
Oops...
It was so nice to sleep in my bed last night. Even if I didn't
get to sleep on my stomach like I always do. The neurosurgeon said no more stomach
sleeping, that it is bad for my back. So, I took Lynn's advice and laid on my
side with a pillow in front of me, and another between my knees. I slept pretty
well, and managed to make it to the bathroom with a full bladder, no accident.
We spent the day watching some t.v., its uncomfortable for me to sit on my
bottom, because it stretches the skin on my back, so I curl on my side with a
pillow between my knees. I take the Percocet every 4 hours and it knocks me out!
I end up doing a lot of sleeping off and on. Once, I wake up and I feel like I
have to go to the bathroom and have a bowel movement, but I don't make it to the bathroom. One
of the side effects of the Cauda Equina Sydnrome is that I don't currently have
control over my sphincter muscle. I can feel when my bladder and bowels are
full, but I can't always control them. So, as much as I hate to do it, I send
Cody out to buy some Depends. While he is out the chiropractor calls to find out
how I am doing. I'm on Percocet and not thinking clearly. I can't remember the
name of the syndrome, so I don't tell him. I let him know that I am still numb
and uncomfortable in my pelvic region and that I do not have control over my
bladder and bowels like I used to. He asks that I keep him updated and let him
know if there is anything that I need. What I need is to be back to the way
that I used to be, but I don't see that happening for awhile. Cody gets home
and I try out some of my new Depends underwear. It sucks that I'm 34 and
wearing diapers again, but if it means I can sit on my furniture instead of
staying on the toilet, then I guess it will work. I decide since I've already
talked to the chiropractor that it's time to talk to my P.A. at the Tempe Doctor's office and let her know
about the major ball dropping that happened. I call and leave a message that I
need to talk to her, not her nurse, but my P.A. herself, and to please have
her call me when she can that day. A little later I receive a call back from
her, she asks how the surgery went and how I'm feeling and I let her know (Cody
had called her office while I was in surgery to let them know I was having it).
I let her know that I had called her several times a day on Tuesday and
Wednesday with my concerns about being numb and that I asked for a call back. She
looks in my file and says that the only note there was is from Tuesday saying I
asked about my x-ray results from the previous week. I ask if she even got my
call from today, and she said no, she was just wanting to check on me. I let
her know that I have been with this practice for 14 years, and even
though I moved across town I continued to stay with that office because I
trusted them, and genuinely enjoyed the doctors there. Having had this major
miscommunication with the office staff and them not properly passing on
messages is serious, and I let her know that I'm not sure I will be continuing
with their practice because this misstep almost cost me the use of my legs. She
says that she understands and she puts me on hold for a moment while she
informs the Doctor/Practice Owner of the ball dropping. He is upset as well. The rest of the day
goes by pretty uneventfully, except for the unfortunate news that Maurice
Sendak (author of Where the Wild Things Are) has passed away.
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